5 Years

I remember the days when weeks felt like a long time to be ill. Once, before ME, I got a nasty infection and was ill for about 3 weeks, but it felt like an eternity. Now the idea of being ill for weeks then recovering doesn’t sound too bad to me. 

 

When I first got sick with ME I swore I’d be better in a few months, then that extended to within a year, and later within 2 years. When I passed all these milestone with no real improvement, it was crushing. I was so optimistic that I would achieve that two year mark. Now I’ve hit the 5 year mark and sometimes it truly feels like it will go on forever. I try to hold onto the hope that it won’t, but it is easy to slip into despair from time to time. 

 

The person I was before I got sick now feels like a distant memory. I still get glimpses of her sometimes, like in my rare bursts of energy, but these past 5 years have definitely changed me significantly. I do remember that I used to worry and stress a lot about things that seem silly to me now, such as things at work that that seemed so important at the time but in retrospect didn’t really matter. Being sick, and for so long, has actually forced me to learn to be grateful for the small things, and taught me to value what truly matters. 

 

My story is a sad one, of a young woman cut down in her prime by a devastating illness, subject to disbelief and a lack of understanding from friends, family and doctors. This illness has taken many things from me: my career, my partner (who I’d hoped to marry before I got sick), my hobbies that I loved, my fitness, my self-esteem, and my independence. 

 

Still, I do consider myself relatively fortunate. My family have mostly been supportive, it only took me 10 months to be diagnosed (it takes some people years), and I am able to live in my own apartment (with a lot of support!). 

 

The last 5 years have not been easy, and I have suffered many painful losses, but I am thankful for the lessons I’ve learned. I do, however feel like I’ve learned enough now! I’m ready for this to be over so I can live a healthy, active life again. Unfortunately there is no miracle cure, so I just have to be patient and take care of myself as best I can, while maintaining hope for a better future.